Lets Talk: Life After Stroke

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Continuing the conversation to transform stroke services in Sussex

We want everyone to benefit from safe, effective, and high-quality stroke services when they need them. Stroke is a preventable and treatable disease. However, it is also one of the leading causes of death in the UK and the largest single cause of severe disability. More than 100,000 strokes happen in the UK every year. With an increasing number of people surviving stroke and an ageing population, by 2035, the number of stroke survivors living in the UK is also expected to rise to over 2.1 million.


In November 2023, NHS Sussex announced that a new state of the art Acute Stroke Centre will be developed in Chichester to further improve outcomes for people who experience a stroke following a successful public consultation and approval process. For more information on the Acute Stroke Centre, please visit: https://www.sussex.ics.nhs.uk/our-work/our-priorities/urgent-and-emergency-care/stroke/improving-stroke-services-in-west-sussex/

NHS Sussex remain committed to transforming stroke services across the whole stroke journey. NHS Sussex are now continuing this ongoing conversation with people and communities across Sussex around Life After Stroke Services.

What is the Life after Stroke Service?

Personalised life after stroke support is an essential part of the recovery pathway. Life after stroke support is different, yet complementary, to rehabilitation and has a strong emphasis on living well with the effects of stroke; it is about empowering people to take an active part in their own recovery in a way that compliments the way that they want to live their life.


The need for change

We are now working with all partners to consider all areas of health and care spend to ensure that it is delivering the highest impact for people and patients and is focused on clear areas of priority both within our five-year strategy Improving Lives Together and our delivery plans for this year. We know we need to focus for 2024-25 on key areas of delivery – national priorities, local priorities, and where improvements are needed for our population.

Life After Stroke services are currently delivered by Stroke Association across Sussex. However there are differences to what is offered to stroke survivors across Brighton & Hove, East Sussex and West Sussex. The are other neuro-stroke charities that also support stroke survivors and their families but are not currently funded by the NHS and other local charities that provide wider support.

The ambition is to create a service delivered across Sussex that is flexible to the changing needs of stroke survivors, their families, and carers. To do this, NHS Sussex are continuing our conversation with stroke survivors, their families and carers as well as clinical staff and local charities in designing a new service that meets this ambition.

One of the aims is to explore how other neuro-stroke charities and community assets might benefit stroke survivors and their families. This will be an opportunity for you to give your feedback and be part of this redesign process. This survey is to ensure that your voice is part of the joined-up response for life after stroke, with the aim of providing an accessible and responsive service that is value for money and meets your changing priorities along your stroke journey.

Continuing the conversation to transform stroke services in Sussex

We want everyone to benefit from safe, effective, and high-quality stroke services when they need them. Stroke is a preventable and treatable disease. However, it is also one of the leading causes of death in the UK and the largest single cause of severe disability. More than 100,000 strokes happen in the UK every year. With an increasing number of people surviving stroke and an ageing population, by 2035, the number of stroke survivors living in the UK is also expected to rise to over 2.1 million.


In November 2023, NHS Sussex announced that a new state of the art Acute Stroke Centre will be developed in Chichester to further improve outcomes for people who experience a stroke following a successful public consultation and approval process. For more information on the Acute Stroke Centre, please visit: https://www.sussex.ics.nhs.uk/our-work/our-priorities/urgent-and-emergency-care/stroke/improving-stroke-services-in-west-sussex/

NHS Sussex remain committed to transforming stroke services across the whole stroke journey. NHS Sussex are now continuing this ongoing conversation with people and communities across Sussex around Life After Stroke Services.

What is the Life after Stroke Service?

Personalised life after stroke support is an essential part of the recovery pathway. Life after stroke support is different, yet complementary, to rehabilitation and has a strong emphasis on living well with the effects of stroke; it is about empowering people to take an active part in their own recovery in a way that compliments the way that they want to live their life.


The need for change

We are now working with all partners to consider all areas of health and care spend to ensure that it is delivering the highest impact for people and patients and is focused on clear areas of priority both within our five-year strategy Improving Lives Together and our delivery plans for this year. We know we need to focus for 2024-25 on key areas of delivery – national priorities, local priorities, and where improvements are needed for our population.

Life After Stroke services are currently delivered by Stroke Association across Sussex. However there are differences to what is offered to stroke survivors across Brighton & Hove, East Sussex and West Sussex. The are other neuro-stroke charities that also support stroke survivors and their families but are not currently funded by the NHS and other local charities that provide wider support.

The ambition is to create a service delivered across Sussex that is flexible to the changing needs of stroke survivors, their families, and carers. To do this, NHS Sussex are continuing our conversation with stroke survivors, their families and carers as well as clinical staff and local charities in designing a new service that meets this ambition.

One of the aims is to explore how other neuro-stroke charities and community assets might benefit stroke survivors and their families. This will be an opportunity for you to give your feedback and be part of this redesign process. This survey is to ensure that your voice is part of the joined-up response for life after stroke, with the aim of providing an accessible and responsive service that is value for money and meets your changing priorities along your stroke journey.

  • Changes to Life After Stroke Service Survey

    This survey is to ensure that your voice is part of the joined-up response for life after stroke, with the aim of providing an accessible and responsive service that is value for money and meets your changing priorities along your stroke journey. 

     

    What is the Life after Stroke Service?  

    Personalised life after stroke support is an essential part of the recovery pathway. Life after stroke support is different, yet complementary, to rehabilitation and has a strong emphasis on living well with the effects of stroke; it is about empowering people to take an active part in their own recovery in a way that compliments the way that they want to live their life. 

     

    Life after stroke support includes; 

     

    • personalised care and support planning – this is based on what is most important to a stroke survivor and their support network, including their emotional needs and personal goals. 
    • personalised information provision – providing accessible information for self-care and better understanding of how to prevent further strokes. 
    • holistic six-month post-stroke review – a dedicated appointment that works with stroke survivors and their carers to assess individual patient progress and needs 4-8 months after hospital admission following a stroke.
    • emotional support – offer of local community support in the form of coffee mornings, befriending or other activities that best suit the stroke survivor and their support network. This can lead to increased social connection after a stroke for a stroke survivor as well as carers and family members. 
    • secondary prevention information and support – accessible information and personalised guidance that outlines ways to prevent likelihood of further strokes. 
    • communication support - enable people to continue to relearn new skills of communication and to rebuild their confidence, which can be badly affected by the loss of their previous communication skills. This complements the clinical speech and language therapy that stroke survivors with aphasia receive. 
    • return to work support – supporting stroke survivors going back to work as part of their recovery, rather than the end of their recovery. This could include support around identifying reasonable adjustments and planning for a phased return to work. 
    • peer support - support groups are a safe and supportive space to try things again, to learn more about stroke and self-care and to build your confidence as you rebuild your life after stroke. Stroke support groups meet in different ways, some are meeting face to face, others are providing support online.
    • access to support for unpaid carers of people who have had a stroke – providing practical and emotional support for carers, which could range from practical financial guidance to befriending with local carers. 


    Please share your experiences and views by completing the brief survey. 

    Take Survey
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Page last updated: 10 Apr 2024, 04:41 PM